Children’s palliative care services

You asked

Do you have a children’s palliative care service specification? (Yes/No). If so, please attach a copy to your response to this request.

Our response

Yes


Do you have a children’s palliative care service specification which states that infants, children and young people with a life-limiting condition and their parents or carers should have opportunities to be involved in developing an advance care plan? (Yes/No)

The specification doesn’t explicitly state this however, the service does provide ACP in partnership with CYP/parents and carers. For further operational information contact the service (Manchester Local Care organisation)


Do you have a children’s palliative care service specification which states that infants, children, and young people with a life-limiting condition should have a named medical specialist who leads and coordinates their care?

The specification doesn’t explicitly state this however, the service does provide a named paediatrician as part of the offer. For further operational information contact the service (Manchester Local Care organisation)


Do you have a children’s palliative care service specification which states that infants, children and young people with a life-limiting condition and their parents or carers should be given information about emotional and psychological support, including how to access it?

Yes


Do you have a children’s palliative care service specification which states that infants, children and young people with a life-limiting condition should be cared for by a multidisciplinary team that includes members of the specialist paediatric palliative care team?

The specification does not state this but operationally an MDT approach is taken. For further operational information contact the service (Manchester Local Care organisation)


Do you have a children’s palliative care service specification which states that parents or carers of infants, children and young people approaching the end of life should be offered support for grief and loss when their child is nearing the end of their life and after their death?

Yes


Do you have a children’s palliative care service specification which states that infants, children and young people approaching the end of life and being cared for at home should have 24-hour access to both children’s nursing care and advice from a consultant in paediatric palliative care?

Yes


Do you have a children’s palliative care service specification which states that infants, children and young people with a life-limiting condition and their families should have access regular short breaks for respite?

The specification does not state this but operationally respite is provided by the team either for siblings, the parents/carers or child. For further operational information contact the service (Manchester Local Care organisation)